Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

February 4, 2010

Trying very hard to find the right balance (but I could really use your help)



{Vintage photo via cessnal152towser’s Flickr stream.}


Last night I could not sleep. I tossed and turned (thankfully my husband is a fairly sound sleeper and didn’t hear my stirrings), repeatedly got out of bed only to lay back down moments later. Such an occurrence is by no means entirely uncommon for me, but there are times when something is weighing heavily enough one one’s mind to the point of robbing them of slumber, that it is best to seek advice from those near and dear you. I sincerely value each of your opinions and friendships, and want to talk bluntly to you all about something that has been eating away at me for quite some time now, in the hopes that you could help me out with it.

A recent conversation with a very dear friend (and fellow blogger/photographer) of mine in which I spoke candidly about certain elements relating to my health helped to give me the courage I needed to turn to my readers for their impute on this matter. (Once the flood gates have opened, as they say...)

I’ll spare you the details (trust me, you want to be spared), but in short I am not in a good state of health. I have not been since I was 18 years old (I’m 25.5 now), as that was the age at which I developed almost all of the chronic illnesses that I now have (more recently however, one cropped up about three years ago). I’m not, truly thankfully, dying or facing a massive medical crisis at this moment, so please do not think that I was leading this post in that direction.

One of the by-products of some of my conditions (I have about a dozen different major, chronic illnesses and a small number of lesser, but still chronic, problems) is that they greatly impede on the amount of time I’m able to spend on the computer each day.

On what I’d dub a “fantastic day”, I’m able to devote about 1.5 hours to being at my computer (many days this number is smaller, very occasionally it’s slightly higher). Due largely to one of my conditions in particular, I’m forced to break my computer usage time up into approximately two to ten minute intervals throughout the day. While I wish I could spend hours on my laptop daily, doing so is not possible at this point in my life and I have come to terms with this. I’m grateful for the time that I do have on the computer and try to use it as wisely as I can.

However, it is virtually impossible for me to stay on top of everything I need (let alone “want”) to get done online, because my computer time is so greatly limited. Between emails, writing blog posts, administering and maintaining a website (that I founded in 2004) for people who share one of my conditions, devoting time to my photography, doing research, and a trove of other online activities (which, believe me, I’ve already greatly scaled back over the last few years), I continually feel as though I’m falling further and further behind on almost everything I need to do online and on my desktop (e.g. writing blog posts).

Over the past couple of days I took an earnest stab at trying to catch up on the wonderful comments that have been left for me during the last two weeks here on Chronically Vintage, however I wasn’t able to visit all of your blogs. This bothers me so, so much (I honestly get stomach pains just thinking that I’ve not been able to come visit all those who took the time out of their day to visit my site and share their awesome thoughts with me), yet sometimes in life one has to admit defeat. In this case, I’ve been whopped by the sheer volume of comments I’ve received lately.

As I say that, please know that from the bottom of my soul, I am massively appreciative of each of those comments. I cannot stress enough how much I treasure your visits and the wonderful words you leave beneath my humble posts.

And so in lies the predicament. As many of you know, staying up-to-date with your comments (by which I mean visiting and commenting on the sites of those who stop by your blog) can just about become a full time job – or at the very least, take upwards of several hours a day. I have to be perfectly honest, it is beyond my physical ability at this point in time to spend multiple hours a day on the computer (on any activity, be it writing posts, visiting blogs or otherwise), and so I’m left racked with guilt now because I haven’t been able to catch up with all of your comments.

Up until this point, about 98% of the time I have managed to catch-up sooner or later on your comments, but this time I simply cannot. I’m truly sorry. I fully understand (and am not upset in the least) if some of my readers opt to no longer comment if I’m not able to comment on their sites. Please know that I will always give it my “fighting best” when it comes to staying abreast with your comments, but that sometimes doing so isn’t possible for me.

I need your advice. I will always permit comments on my posts, and I love hearing from you all, but I do not know how to approach the fact that sometimes I’m simply not able to keep up with your comments. What do you suggest I do?

As my readers, will some of you be hurt if, from time to time, I’m not able to comment as frequently on your posts as you may on mine? How to I determine what a good balance of time spent on replying to comments is? Perhaps is there something I can do to make up for not being able visit you on certain days?

Am I, as I know my very level headed husband would likely say, worrying about this perceived issue too much? Please, I implore you, tell me how you would handle this situation if you were in my shoes? (Yes, I do see the irony in asking for comments.)

With every fiber of my being, thank you for reading this post and for your impute, sweet friends.

July 25, 2009

A bit out of commission this weekend

Hi my lovely readers, how are you each this weekend? I’m afraid that things are a little rocky here at the moment. My husband injured his left foot on Thursday evening and we spent most of Friday waiting to see at doctor at the ER. Thankfully it’s nothing immensely serious (a broken toe), but still the poor dear has certainly had better days.


{In a scene reminiscent of our trip to the hospital on Friday, a nurse examines a patient's foot in this Life magazine photo from 1959.}

One of my medical conditions is quite aggravated at the moment as well, so I’m afraid that there won’t be an edition of the Pretty Link Roundup this weekend. I’ll post an even larger number of links when I put together the next one to help make up for it. Likewise, I’m afraid I may be a little behind on posts in general and replying to wonderful comments (and visiting your stellar blogs) for a few days.

I’m not sure yet if there’s be a Monday Muses this week either, but regardless I will post an update on how we’ll both doing in a day or two. Thank you very much everyone for your comments on my posts this week, I really love knowing how much you sweet dears enjoyed the Five For Friday post.

I truly hope that you’re all doing well, I miss you each and hope to be back in the loop really soon!

Big hugs & joyful weekend wishes to everyone!

May 12, 2009

Wear purple today in support of Fibromyalgia Awareness

Generally speaking I prefer to keep the context of this blog on the subject of vintage related topics with a peppering of events from my daily life mixed in for good measure, but today I wanted to take a moment and tell everyone about the fact that May 12th is the official (annual) Fibromyalgia Awareness Day. This year’s thought provoking Awareness Day slogan is “Fibromyalgia Affects Everyone”, which I think there is certainly a lot of truth to.



As someone who has battled this chronic, painful condition for several years now, I can tell you first hand what a challenge it is to face and also how drastically misunderstood and under-acknowledged fibromyalgia is (did you know 80 to 90% of those with fibromyalgia are women?). Moreover, I also know that sort of impact that FMS (as fibromyalgia is often abbreviated to) can have one a person’s quality of life and how drastically advances in patient care, medical treatment and better still a cure are needed.



While I’ve been writing about medical topics publicly since 2004 when I founded a website dedicated to helping people with a chronic bladder condition that I have (interstitial cystitis), I won’t go into great detail about what FMS here. Instead I’ll provide an small informational quote from the National Fibromyalgia Association on what FMS is and encourage you to take a few minutes today to read more about this condition – chances are at least one person you love, know or have met is coping with this FMS.

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.


One thing that everyone can do today to help raise FMS awareness is to sport some purple, as this lovely (and very spring appropriate) hue is the official representational colour of fibromyalgia. Weather you don a purple lapel ribbon or go full on lilac in a head-to-toe purple, doing so is a wonderful way to show your solidarity for those suffering from the painful affects of FMS.


{Polyvore set featuring vintage inspired purple pieces, entitled “Where there is love, there is hope” created by yours truly.}

Heartfelt thanks to those who wear purple, read up on FMS or do anything else to help bring awareness to this condition. If anyone needs more information or has any questions about FMS, by all means you are welcome to contact me and I will do my best to help.

Until next post, tender hugs to everyone.